Thank you for reading this post, don't forget to subscribe!
Dwelling With CF: From Day Care to Excessive Faculty
For youngsters with cystic fibrosis, the primary day of elementary, center, and highschool not solely marks the transition towards better independence, but additionally better duty in managing their illness.
To assist information you and your little one by way of these transitions, individuals with CF and their households share experiences and recommendation on what to anticipate and the way they’ve adjusted to challenges of rising up with CF.
The “Faculty Transitions for Folks with CF and Their Households” segments in our “Pathways to Lifelong Well being” video sequence additionally embody views from CF care group members and faculty personnel. Matters mentioned embody beginning day care, partnering together with your kid’s college, managing therapies with after-school actions, college transitions, studying independence, and transitioning from pediatric to grownup care.
An Introduction to Dwelling With CF
An introduction to the video sequence on college transitions, from day care right through highschool.
Going to Day Care
4 households share their experiences about sending their little one to day care and speak about germs, an infection prevention, and educating day care employees.
Partnering With Your Faculty
Households, college school, and care group members speak about partnering with college employees to accommodate the particular wants of scholars with CF, together with 504 plans.
Actions
A dialogue on balancing therapies with after-school and summer time actions, with views from households and CF care suppliers.
Faculty Transitions
Study handle college transitions, together with transitioning from elementary to center and center to highschool, deal with therapy at college, and faculty work whereas within the hospital.
Friendship and Studying Independence
A dialogue on the significance of being open and sincere with mates about CF, transferring towards better independence, and dividing up duties of care.
Transition From Pediatric to Grownup Care
Households and social employees speak about managing the transition from pediatric to grownup care and the significance of asking questions.
Have fun Your Kid’s Transitions
Steerage for fogeys on when to step again as their little one learns dwell an lively life with college and CF.
Hope for the Way forward for CF
A message from Robert J. Beall, PhD, former president and CEO of the Cystic Fibrosis Basis, on how the journey of dwelling with CF continues to evolve, now marked by transitions into maturity.
